Friday, July 6, 2007

Thursday, July 5, 2007

The letters begin

Dear Laurel,

Thanks so much for this long and thoughtful e-mail. It was good to write it down, because no one else in the family can really understand what is needed and wanted unless they know what that might be.

What type of things would be helpful to write about Jordan? In other words, how can the truth be told--but the truth that will really mean something? Sometimes someone can put in a detail that is not helpful or leave out one that is. What are the guidelines for acceptance? Surely there is something more than a number on an IQ score-sheet. Surely common sense that sees he is not able to be on his own because he is certainly developmentally disabled. How could anyone say otherwise, especially since this happened from the womb on, all the way back to an impaired gene? That is developmentally impaired from the getgo I would say. He obviously didn't develop in a normal, healthy way that would give him the possibility of handling his own life in any way at all. What do they expect to happen to him if you die, his father dies, his grandparents die? Do they really believe in warehousing people instead of helping them? Is this what our society is supposed to be about? I certainly hope not.

I will write more when I know more about the guidelines. With love, M

Sunday, July 1, 2007

Please Help Raise Money so Kevin Beacon Can Help My Son

Rear view mirror

Mother to Mother - may I tell you Jordan has always wound up safe. The most was just recently. Not being able to persuade Jordan to get in either car we stayed with him driving at a very slow pace, his father way behind and I way in front; just far enough to see him in my rear view mirror. I even had a man that pulled up behind me and said "I noticed that you have been following this young man, do you know him?" "Yes, I know him, I know him very well and we will be at this for a bit longer!" (he then proceeded to write down my license plate)! After 2 hours, Jordan finally got tired and got in to my car. Safe again. Our children are special and do special things. Some where along the line we have to see the humor in it. I could share more stories, such as the time in Chicago when he ran from the school and after hours of searching (in the rain) did I find my him at the police station with a big smile on his face! (taken from an email to another mother, 07-07)